A perfect match!
We found out on Wednesday that my Dad is a perfect match for my transplant! I was hoping that we wouldn't have to do a unrelated search at all but never dared to dream of such a perfect match. Now... I don't know exactly what that means but I know that it's good news. For now that's enough. Also because this will now be a related donor match transplant they only have a 3-4 week wait instead of 6-8 weeks.
The Fludara didn't work at all. It made me sick and didn't at all slow the progress of the disease. In the last month we've switched back to a drug I've taken a few times before. We know it works, and it has been, but we also know that it only works for a short time, 4-6 weeks max. It's all a game to keep the disease from continuing to grow while we were waiting to find a donor.
The Fludara really wiped me out. I was going in every other day for fluid no matter how much I drank, I never really could stay ahead of that. It still took about 2 weeks after I stopped taking it for my body to hold onto the fluid that I gave it. I still to the life of me don't have any idea where all that fluid went because I never saw it!... if ya know what I mean....
As far as finances we will end up paying for some of this transplant instead of what has always previously been the case that the insurance company has had the coverage for us. Luckily we knew that there was a chance that this would happen eventually and have enough equity in the house to borrow against it. What's a little $20,000 here and there?
The drug I'm on now,Rituxan, I get once a week and it does make me tired but not nearly as tired as I was with the other drug.
My memory is getting worse by the day, poor Tyler! I keep deleting her shows on TIVO and I swear I don't know why or even remember doing it. There is now a note on the TV to remind me that I'm no longer allowed to delete anything!
I thought I'd go to bed tonight and try to get a good nights rest then hopfully have the energy to make dinner tomorrow but at 1AM that doesn't look like it's going to happen.
I'm so glad I got a chance to share my good news with all of you and had the energy to type it all out. I hope my disorganized mind isn't too obvious!
posted by Suzy Haney @ 1:10 AM
9 Comments:
Congratulations on the match; I had heard from your husband online. Best wishes for a calm, illness-free next few weeks. You are in my family's prayers. Lots of love.
Suzy! I am so happy to read that you have a great match. Your still in my prayers. Bonnie
I am so happy to hear your good news. You remain in my thoughts and prayers.
Sandi/gagenana
I am so excited for you girlie!!! I've been thinking about you daily and so happy for this news for you!
I'm so glad to hear your great news! I hope it's an astounding success and you're able to harrass ... err... chat... with all your LM friends soon!
Melissa / Papercrazymom
I'm so glad you can proceed! Your brother never mentioned he wasn't a match so I've been wondering what was going on? We love you and are in our prayers consistantly. Say hi to your family. Your sis in law
Suzy,
I'm so very happy with your wonderful news. I think of you all the time. You're still in my thoughts and prayers.
Congratulations on the match, Suzy. All fingers and toes are crossed.
I remember 'Chemo Brain', it really blows one's short term memory - I think I remember!!
Ritux... it made my nose tingle, but it did it's job of reducing my tumour load. Just go for it.
Thinking of you,
Sully,
glad I had a match.
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